
Hi Friends! Today I’d like to talk about a topic that weighs heavy on my heart and mind on a daily basis. I find it necessary to talk about this even though it does require some vulnerability. I didn’t know what PMDD (Premenstrual Dysphoric Disorder) was until someone close to me was diagnosed with it. Now I feel compelled to spread the word since around 10% of menstruating women actually have it! Too many people have PMDD and are unaware because their doctors don’t even know about it, or pay any mind to the fact that sometimes we’re “crazy” because of our bodies, not just our minds. It’s biology, not a behavior choice.
PMDD is a severe form of PMS that includes physical and behavioral symptoms that usually resolve with the onset of menstruation. PMDD is commonly misdiagnosed as borderline personality disorder (BPD) or bipolar, but it’s actually a severe extension of PMS. I recently found out that it’s legally considered a disability under the Equality Act and you can have workplace accommodations if needed! The symptoms are usually pretty brutal. In addition to the common symptoms of PMS, you’re also dealing with most of the following:
- Anger/irritability
- Feeling on edge, overwhelmed, or tense
- Anxiety and/or panic attacks
- Depression and suicidal thoughts
- Difficulty concentrating
- Fatigue and low energy
- Food cravings, binge eating, or changes in appetite
- Headaches
- Insomnia
- Mood swings
You’re more prone to PMDD if you have:
- Anxiety or depression
- Family history of PMS, PMDD, or mood disorders
- Personal history of trauma, abuse, or other stressful events
So, as you can guess since I’m writing about it, I have PMDD and I wish I had understood it sooner. My wake-up call was when my son was around 8 months old. My cycle had returned and suddenly I felt like a totally different person. I remember laying in bed thinking about how much I didn’t want to be alive, but I needed to stick it out because he needs his mom. That scared the shit out of me afterwards. I hated pretty much everything in life except for him. I thought my marriage was going to crumble because I was such a miserable human, yet I couldn’t even explain why. Then it subsided, came back, and subsided again. A trend was noticed and with guidance from the PMDD badass in my inner circle, I started to keep track of the timing.
Now going to the doctor wasn’t exactly easy. Because the knowledge of PMDD is so new (relatively, but it’s no excuse in my opinion) many doctors are simply unaware of how to treat it. I knew that waiting until I came back home wasn’t an option, so I set out to find one in Finland. I ended up finding a gynecologist with vast knowledge of the disorder! My options were to go on birth control or anti-depressants. I REALLY didn’t want to go on birth control so I chose the anti-depressants. I’m not 100% sure of their efficacy but I think they help somewhat. I should probably have those reevaluated in all honesty. Being told you have a disorder is such a perplexing thing. I was happy when I left her office. I felt like I should have been upset, but I was so happy to have an answer and I could stop thinking I was some sort of raging lunatic.
Fast forward to today. I still don’t have it under control but I’m getting there. My wife is a real trooper and she understands that it’s not a choice I am making. Not everyone is as lucky, though. PMDD can destroy marriages, relationships, friendships, and even families. It all depends on how understanding your support system is. Having PMDD really clashes with my personality. I find myself struggling to balance my social needs with the depression and low energy that PMDD brings to the table. If I’m in the middle of my hell-weeks and I see something ridiculous or bigoted on Facebook, I feel no remorse for the comment that follows. I mean, it really goes on and on.
They’ve actually found that PMDD and emotional abuse in childhood have a strong link- 71% of women with PMDD reported to have experienced emotional abuse in their young lives. And with that, I’d like to give a shoutout to my ex-step mother, the most emotionally and verbally abusive person I have ever met. I don’t think this is the sole reason for my having PMDD, but I would be silly to pretend like it’s not a very real possibility. It’s science, man.
It can also be genetic, which is also really terrifying. When we were contemplating doing IVF with my eggs, we were going to choose the gender of the embryo (only allowed in the U.S. though) and avoid having a girl with my genetics. But I realized that wasn’t necessary because knowledge is the key. Knowing this may be an issue and being able to provide my child with the tools they need to overcome it, honestly, is the best thing a mother can do. I don’t need to avoid having a daughter- I just need to remember how it feels and help her through it if she ends up on the same path. And if you’re reading this and you have a daughter, make sure she knows about this as she gets older.
Tragically, 30% of women with PMDD attempt suicide. That’s the percentage of women who have made attempts, that does not include the number of women who struggle with suicidal ideation as one of their symptoms. One study showed that women with PMDD are 70% more likely to experience suicidal ideation than women without a premenstrual condition. It is crucial for those struggling with this condition to reach out for support if they experience suicidal impulses.
*Remember, dial 988 for the Suicide and Crisis Lifeline. *
To my PMDD badass I referenced earlier,
Thank you. Thank you for the nudge, and thank you for always being a listening ear when I need it. I hope I can at least make more people aware of PMDD in honor of you and the awareness you have brought into my own life. Your strength does not go unnoticed- you are the strongest person I know.
